WORLD PANCREATIC CANCER COALITION MEMBER PROFILE

In 1997, the Hirshberg Foundation was established to fund groundbreaking scientific research, provide patient education and support, and sustain the hope that this cancer will be eradicated once and for all. To date, the organization offers many programs focused on accelerating multidisciplinary pancreatic cancer research, providing comprehensive support services to patients, educating families, and raising community awareness.

WHERE WE STARTED

Over twenty-five years ago, Agi Hirshberg set out on an extraordinary journey to lead the fight against pancreatic cancer in honor of her late husband, Ronnie. Determined to find answers, she made a promise that still holds true: she would be relentless in the fight against this disease, and she would never give up. Today, the Foundation she started remains at the forefront of pancreatic cancer research and is a beacon of hope for patients and families facing this disease.

The Hirshberg Foundation’s research efforts launched with the opening of the Ronald S. Hirshberg Translational Pancreatic Cancer Research Laboratory at UCLA and the Foundation’s world-renowned Seed Grant Program. The Seed Grant Program provides early funding for researchers, opening the door for investigators to secure additional support to advance their work. To date, over 120 individual and collaborative Hirshberg Seed Grants have been funded at more than 45 research institutions in the US and abroad.

Under Agi’s direction, the Foundation’s Scientific Advisory Board and an ever-growing community of doctors and scientists have been instrumental in elevating patient care, leading research globally, and increasing awareness in the medical community. In 2005, the Foundation funded the UCLA Pancreas Tissue Bank, sharing specimens to aid the basic, translational, and clinical research activities of investigators. That same year, the first Symposium for Pancreatic Cancer was presented to the pancreatic cancer community, providing critical information and updates on treatment, research, and topics including nutrition, genetics, surveillance, and more to patients, caregivers, the research and the medical community.

To date, the Hirshberg Foundation’s patient programs include one-on-one support, patient-focused events, educational resources and webinars, financial aid for low-income households, the National Comprehensive Cancer Network (NCCN) Guidelines, and the Agi Hirshberg Center for Pancreatic Diseases at UCLA. Patients and families are at the heart of the Foundation’s mission, and each of these resources empowers them as they navigate a diagnosis with the support they need.

Thanks to the partnership, guidance, and brilliance of doctors and investigators from every corner of the globe, significant strides have been made in both research and patient care. Today, the Foundation remains focused on finding a cure for pancreatic cancer and empowering patients and families whose lives have been touched by this disease. Advances being made are not only offering families hope, they’re giving patients a fighting chance.

WHO WE ARE AT OUR CORE

When the Foundation was established, it was organized around Agi’s vision and five mission pillars. To date, the Foundation has accomplished 4 of those 5 goals, with a cure being the final piece of the puzzle. The hard-fought battles of our patients, families, researchers, and medical community have brought us closer than ever to a cancer-free life, and the Foundation remains committed to our mission and our mantra to Never Give Up!

Seed Grant Program

Each year, the Foundation Seed Grant program provides research funding to innovative projects led by basic and clinical investigators. To date, over 120 research projects have been funded at 45 medical and research institutions in the United States and overseas, many of which have gone on to receive NIH support. The program funds research in treatment/therapy, patient care, early diagnosis, detection, cancer biology, basic science, prevention/metabolism, and research core facilities. It is allocated annually- submissions pouring in from locations around the world, with a notable emphasis on collaborative initiatives involving multiple research institutions.

Symposium for Patients & Families

The 18th Annual Symposium on Pancreatic Cancer returns to the Luskin Center on April 13th with a host of new topics and guest speakers. This invaluable event is provided free of charge and brings together patients, caregivers, medical professionals, and scientific researchers. This year’s Symposium will cover topics from genetics to enzymes, the Pancreatic Cancer Early Detection Consortium, and the Canopy Cancer Collective. The highlight of this event includes a patient and caregiver panel sharing personal experiences, unique perspectives, and inspiration with survivors and caregivers. Guests may attend in person or online, with videos made available later for viewing.

Agi Hirshberg Center for Pancreatic Diseases

The Agi Hirshberg Center for Pancreatic Disease continues to set the standard for state-of-the-art care as it grows and thrives. The Center has made tremendous progress, assembling an ever-growing arsenal of tools to understand and mitigate the effects of the illness and advance its quest for greater patient comfort. Now, under the direction of Dr. Timothy Donahue, the Center recently opened in a new larger space at UCLA where patients can receive top-notch care from their entire medical team. Patients are able to meet with surgeons, medical oncologists, gastroenterologists, palliative care specialists, dietitians, genetic counselors, clinical trials coordinators, and therapists from the Simms-Mann psychosocial care team – all in one location and often in one visit.

UCLA Partnership

The longstanding partnership between the Hirshberg Foundation and UCLA plays a crucial role in advancing research and improving patient outcomes. The Foundation funds laboratories, core research facilities, and the Pancreas Tissue Bank. The relationship extends to psychosocial care from the Simms/ Mann Center for Integrative Oncology as well. As a member of the Canopy Collective, our UCLA team is making great strides in nutrition, palliative care, genetic testing, clinical trial participation, and patient education. The clinical trial portfolio of the Agi Hirshberg Center for Pancreatic Diseases is also among the strongest in the country. Trials have robust patient enrollment, with collaboration across multidisciplinary teams.