In 2022, Whitney Goldin’s mom, Karen, was diagnosed with pancreatic cancer,  a disease Whitney has become  too familiar with but never imagined would touch the life one parent, let alone two. The diagnosis came after the family’s devastating losses of Whitney’s father, grandfather, and great-grandfather to the same disease. “My dad passed away in 2021 and then it was a shock for my mom to be diagnosed in 2022. I decided I’m just going to turn my sadness into action.” Today, Whitney is ready to end the cycle of pancreatic cancer in her family. She’s already turning that sadness into action by raising awareness and rallying her entire community in the Chicago area with her Purple Ribbon Event, Pushing Back Against Pancreatic Cancer.

Whitney, a loving mother, dedicated daughter, and attorney has generously shared her family’s remarkable story to help raise awareness since her mom’s diagnosis. “Getting to this path has been riddled with pain, seeing both of my parents go through what they’ve gone through,” said Goldin. “This devasting disease is impacting too many of my loved ones. Enough is enough, I’m done.” Whitney wouldn’t sit idly by without taking their own action.By February of 2023, her mom was scheduled to have the Whipple surgery and Whitney was hosting a Purple Ribbon Event to benefit the Hirshberg Foundation. “I have never planned an event before other than my kids birthday parties so I have zero event planning experience but I started doing some research. I called the Hirshberg Foundation for Pancreatic Cancer Research and I said, ‘Listen, I’m going to plan an event and it’s going to be in three months and I have no idea if anyone will even come, any money will be raised, but anything I raise I’m going to send to you.’”

Hosted at Temple Sholom of Chicago, Pushing Back Against Pancreatic Cancer featured yoga, brunch provided by a variety of Chicago eateries, tequila mimosas, and a silent auction with items from top Chicago businesses. Whether you live in Chicago or any other city or town across the country, Whitney has demonstrated the importance of sometimes going outside your comfort zone when it comes to helping raise funds for pancreatic cancer research and patient programs, “I went into the event planning process trying to be as open minded as possible with what I thought would attract the most people and raise the most awareness. The event evolved as more and more people registered and as more and more businesses donated. I took a deep breath of gratitude at every turn, and tried to remain as flexible as possible.” By the end of the day on February 2nd, her community had helped raise over $42,000! “The day of the event was more perfect than I could have ever imagined. The two-hour event passed by in the blink of an eye. But at the very end, I reminded myself to take a step back and to witness everything come to fruition. It was so touching to be surrounded by so many people- all with the communal goal of raising awareness.” Whitney shared.

Throughout the planning process, Whitney continued raising awareness in her Chicago community through a televised segment with Fox32 Chicago News, and an interview with Chicago’s Very Own WGN9. She has shown unwavering support throughout her mom’s journey and continues to connect with other families by sharing her family’s story, including a recent podcast interview on Living Hope: Your Journey with Pancreatic Cancer. Today, with the help of a committed medical team her mom is thriving. She continues her journey back to health one day at a time. Whitney is ready to create a new cancer-free path for her mother and family, “One day, there will be a cure, and I want to do everything I can to help us get there,” she shares. She has found a new purpose in her life – to eradicate pancreatic cancer. “We’re going to get closer and closer to a cure and I will do everything I can throughout my life and devote myself to getting closer to that,” she said. “I can tell you that that is my new goal. Forever.”

Ten years ago, Julie Weiss finished her journey of 52 marathons in 52 weeks, in a quest to raise one million dollars for pancreatic cancer research and became known as the Marathon Goddess. On Sunday, March 19th, Weiss will be celebrated by pancreatic cancer survivors and supporters everywhere as she crosses the Los Angeles Marathon finish line yet again, and at the Hirshberg Foundation’s Purple People Party Cheer Station near Mile 21. The celebration will commemorate Weiss raising more than one million dollars for pancreatic cancer research over the past decade, and helping raise awareness about the disease that has the highest mortality rate of all major cancers.

MY BIGGEST FAN & INSPIRATION…

In 2010, following the death of her father to pancreatic cancer, Julie remained determined to make a difference, and running gave her a purpose. Just one week after he passed, she fulfilled their dream for her to qualify and run the Boston Marathon. He was, after all, her biggest fan. “I know he was there with me. He was the wind at my back and had the best seat in the house my heart after I ran the Boston Marathon in 2011,” Julie shared. From there, she decided to turn her passion into a purpose and embarked on an incredible endeavor to raise hope, money and awareness for pancreatic cancer. In time, Julie chose the name Marathon Goddess, but is quick to point out its true meaning that it is not about her, it’s a name that allows her to encourage others to embrace their passion and let it shine.

A $1 MILLION DOLLAR GOAL…

Since 2010, Julie has made many ties in the pancreatic cancer community. She has witnessed the ups and downs of statistics and gotten to know the faces and journeys of countless survivors whom she has run in honor of. Through the ups and downs, her focus hasn’t waivered: “When I began this journey, my objective was to raise a million dollars to find a cure for pancreatic cancer, the disease that took my father away from me, and to help others affected by this insidious disease,” said Weiss.“Julie set out to achieve a lofty goal, at the grass roots level, and never wavered in her commitment to see it through,” said Lisa Manheim, Executive Director of the Hirshberg Foundation. “In addition to being our partner in helping spotlight pancreatic cancer, the awareness and money she raised has helped fund much-needed research bringing us one step closer to finding a cure.” Throughout the years, Weiss has received support and donations from corporate sponsors and running organizations, however, the majority of her fundraising has come from individuals and families that have been impacted by the disease and those she has inspired through her running.

PHILANTHROPIST & AMBASSADOR…

As a marathon runner, author, philanthropist, ambassador and advocate, Weiss keeps busy by sharing enduring stories of hope, empowerment, loss and resilience from patients and families fighting for their lives and the lives of their loved ones. She has remained a fervent supporter of the Hirshberg Foundation throughout her journey, motivating fellow runners on the Hirshberg Training Team each year, running the LA Cancer Challenge 5K and receiving the Never Give Up Award, leading a team at Tour de Pier, and inspiring communities across the country to Never Give Up hope. She has been a spokesperson for the Hirshberg Foundation’s successful fundraising campaign, 52 Races for 52 Faces, a year-long, philanthropic crusade in which she competitively ran in marathons, half marathons, 10Ks and 5Ks in 52 cities throughout the U.S., and across the Pacific Ocean to shine a light on pancreatic cancer. The campaign started and ended with Weiss running the Los Angeles Marathon which also included the foundation’s signature Halloween fundraiser, the L.A. Cancer Challenge.

Through running, Weiss hopes to show the world that pancreatic cancer is much more than devastating statistics. There is a name and a face behind every survivor, and she is running for them. “Over a decade later, my mission to fight the good fight against pancreatic cancer has evolved to not only fundraise, but to be a voice for patients and to create awareness about the risks.” She added, “Although we have seen progress, more needs to be done, and together, we can find a cure. We got this!”

AN EXTRAORDINARY FINISH…

Throughout this extraordinary journey, Julie has shared enduring stories of hope, empowerment, loss and resilience from patients and families fighting for their lives and the lives of their loved ones. She has crossed over 1,000 finish lines, whether she was completing her 52 Races for 52 Faces campaign or her most recent 12 races in 12 months to raise awareness about the 5-year survival rate that has increased two years in a row. The stories she has helped share will never be forgotten and thanks to the one and only Marathon Goddess, we are $1 million dollars closer to a cure through research funding and patient programs. “Running with a purpose to fight the good fight against pancreatic cancer has become my mission; I will not stop until we have found a cure.” We look forward to cheering her on as she leaps across her 116th marathon finish line!

The Oksayans have been part of the Hirshberg Foundation family since Purmine “Mine” Oksayan was diagnosed with pancreatic cancer in 2016. From attending our Symposium, sharing their stories and being honored at the LA Cancer Challenge, Mine and her daughter, Ani, have been fierce advocates and loyal supporters. We are happy to share another chapter in the Oksayans’ story, from newlywed Ani.

My husband Greg and I were married on September 1, 2022 in a smallish ceremony in San Marcos, CA. We’d met three years prior and had been living together for a year before our wedding. Our little family was complete with my contribution of a 14 year old son and his of a 10 year old Chihuahua; my first pet ever, if you can believe it. As we started planning our wedding, we kept emphasizing to one another that we merely wanted a celebration; simply an opportunity for our friends and family to come together and share in our joy of finding love in one another.

The question of what we "wanted" as gifts kept coming up and it didn’t take much consideration to realize that we only wanted our loved ones’ presence without the expectation of any gift. We clearly communicated to our guests in the invitation to feel no obligation to gift us anything other than their support and love. However, we knew that there would be some level of insistence or discomfort with this request on the part of our close loved ones, so we decided to create a donation fund for a cause that was dear to us. Once this was decided, there was no doubt that our cause would be the Hirshberg Foundation.

For the last 6 years, the Foundation has been a constant source of information, support, camaraderie, and inspiration to my family. They were there for us during the horrors of the first days and weeks of my beautiful mother’s pancreatic cancer diagnosis to the traumatic days of constant hospital visits, chemo and eventual Whipple surgery. And they are here for us today and every day, whether to give a huge hug at an event or to share tears of relief and congratulations as we celebrate year after year of her cancer being behind us.

We weren’t sure whether anyone would actually act on the opportunity to donate but we quickly found that, indeed, many people were drawn to the idea of contributing to a cause that we held close to our hearts. This option allowed our guests to honor Greg and I while learning that someone dear to us had experienced a deadly disease and been supported by an organization that made tremendous strides in research, care and support of those affected.The ability to use our event, our celebration, as a call to action towards a cause that is both emotionally special and globally relevant felt incredibly rewarding and added an additional sense of meaning to our union.

In all honesty, my mom was not surprised that we would have chosen to forgo gifts and request donations to the Hirshberg Foundation. As a family, we have always felt completely supported by them, so it felt natural and right that we would take every opportunity to offer that support in return. This was a small gesture towards championing a selfless and benevolent organization dedicated to advancing research and providing resources and support to patients and their families at a time when they need that light the most. The opportunity to advocate and exhibit support through the vehicle of a special personal event is a privilege that Greg and I are honored to have had.

I was diagnosed with pancreatic cancer by chance by my local internist. I had a “tummy ache” which was very unusual for me, so I had to check it out. I minimized it, but my internist said, “I know your body, I’m going to run a few tests.” I was 67 and had just finished my first sprint triathlon only 6 weeks prior. Throughout my life I had been around 10 to 30 pounds overweight but at that time I was in the best shape of my life. 

My doctor called me the same day to come to his office and I was given THE News: “You have pancreatic cancer. I’ll try to get you into surgery as soon as I can.” By chance the surgery schedule was filled and I had about a week to worry and call everyone I knew who might be able to help, support and inform me about what to do. The same name came up several times: Dr. Isacoff at UCLA. I made an appointment and trusted him and what at that time was a unique protocol: a low-dose, long-term unique chemo cocktail. Since I lived in Santa Barbara, I had friends drive me to UCLA where I had a chemo infusion for at least an hour, then an appointment with Dr. Isacoff, then met my friend for lunch and was driven back to Santa Barbara. Sometimes I took the train. I had 3 weeks of varied chemo with one week off for 8 months.

People ask, “How bad was it?” It was 18 years ago and life since then has been so good that my memory fades about many of the challenges. The first few days of chemo were insignificant, then it took hold and I felt “yucky” for about two days, came out of it for about a day, then spent two days feeling pretty good, then back for another infusion week. The fourth week without chemo seemed somewhat normal. 

During the 8 months of chemo I lost my hair and I lost my appetite –that was a surprise for someone who often over-loved food. I didn’t have a taste for anything raw which surprised my salad loving self. I had a couple of serious dips when I was taken to the hospital oozing from every orifice. There were nights when I was so wired I couldn’t sleep and wrote love letters to family and friends. AND, I also went on ski trips with my family, continued to work from home, drove where I needed to go, went out to dinner, went to church and temple, celebrated holidays and just lived life. I even had an actual witch doctor who was a Harvard & Stanford trained MD.   Mostly I did everything. I desperately wanted to *live* and knew that I had to do everything in MY power to support the work the doctors were doing.

My motto was “leave no stone unturned." I thought, if there is a possibility it could help, if it has helped someone else, I’ll do it! There was a monthly support group for pancreatic cancer patients and their families at the Cancer Support Center in LA. I didn’t miss a meeting and my family also went to the meetings. There was a Cancer Support week long workshop I attended with my family who called it “Cancer Camp.” I worked with a nutritionist who taught me to juice and make smoothies. I bought cancer cookbooks. I hired a weekly cook. I had a friend bring me flowers every week. I had weekly massage and acupuncture. I did daily meditation and listened to meditation and cancer healing tapes. I especially listened to healing tapes while getting chemo. Then, I joined a gym that had a Cancer Program with both information and physical exercise. I was faithful in working out as best I could three times a week. I saw a Chinese doctor and used Chinese herbs daily. I exercised and walked daily and ate healthy as much as I could. I did everything the doctor told me to do, and everything meditative and spiritual my heart and hospice* counselor suggested. Hospice was especially supportive on an emotional level.

After the 8 months of chemo, Dr. Isacoff suggested Dr. Charles Yeo as my surgeon. At that time he was at Johns Hopkins Hospital in Baltimore, Maryland. He is currently at Thomas Jefferson University Hospital in Philadelphia. I had a Whipple surgery in 2005 and no further treatment. As  usual with the Whipple surgery there were complications that were handled appropriately by the doctor and hospital. I was there for 4 weeks. I walked the halls every day holding my pole of medicine bottles with tubes and needles going into my body. 

In the lobby of the hospital there was a piano. My then-spouse said that the minute he knew I was going to be ok was when he began to play the piano and while he was playing I began to dance with the pole and dangling bottles. 

A few years later, there was concern about breast cancer. I had a lumpectomy in 2007 which showed DCIS but no cancer and all subsequent exams show no cancer.

I continue to reach out and tell my story to anyone who is willing to listen. And I can only hope that my story inspires and brings hope to others. It is crucial that we raise awareness, spread information and stories. We need to provide support and more stories about survivors, to give hope to those dealing with this diagnosis. I tell everyone who is interested about my story because there IS hope and there ARE angels. I have lived to see both of my children married, and seen 3 grandchildren born and being raised. I have travelled and lived to enjoy the life and love of my family and many friends. I continue to work out either swimming, walking, or playing Pickleball nearly every day and am engaged in many civic, entertainment, cultural and religious organizations. As of now, 2022, I have been cancer-free for 18 glorious years, I can only thank heaven and all the Angels along the way.

*“Hospice” and “palliative care” have be used interchangeably. Palliative care is now the norm for symptom management when diagnosed with cancer. Learn more about palliative care

A celebration of my first-place gold medal win at the LA Cancer Challenge on October 23, 2022. For those who have been sharing my 2-year Pancreatic cancer recovery, I wanted to share this exciting news.

I was invited to enter the 5K Run/Walk at UCLA, but my first inclination was to say, "I’m not sure. I’m not much of a large crowd person and I have run/walked alone these last 3 years of COVID and my cancer recovery."

In reality, I was a little afraid of the unknown. I had never entered a 5K in my life.

The next day, my spirit nudged me to change my mind. "Why not accept this opportunity for a new adventure, a chance to grow? And this would give you the opportunity to honor your own body – which endured a distal pancreatectomy (removing 40% of your pancreas, all of your spleen, and 8 lymph nodes) at UCLA on October 23, 2020, 2 years to the date of the LA Cancer Challenge.”

So, I entered the race and thoroughly enjoyed mixing with all the other people supporting the pancreatic cancer community – survivors, family members, teams dedicated to someone who died of pancreatic cancer, babies in strollers, young children, teen, adults of every age and ethnicity – donating their time and money to support the Hirshberg Foundation for Pancreatic Cancer Research’s mission to find a cure for pancreatic cancer!

The event raised over $520,000!!!! And over $10 million has been raised since the inception of the Annual LA Cancer Challenge 25 years ago by Jon Hirshberg, who lost his father Ron to pancreatic cancer.

One of the highlights of the day was a 5-minute hug with a fellow survivor, 8-years cancer-free, who had bravely undergone multiple surgeries and multiple rounds of chemotherapy. He was trembling at first, but his body was finally able to relax and we both cried and breathed deeply together. It was very moving!

The fact that I won a First-Place Gold Medal for the fastest time in my age category was a total surprise to me and "icing on the cake."

I am grateful that I said "Yes" to the invitation and the challenge. I was blessed beyond measure. I send blessings to cancer patients and their families all over the world and encourage you to have faith, fight like a warrior, and know that you are loved and valuable!

"Your individual spirit is your most powerful weapon in the battle with cancer." ~ Judith Anne

Connect with Judith

My cancer story begins at the end of December 2012 when I was back East at my best friend’s father’s house. Growing up I spent a lot of time in that house. I went to the bathroom and was reminiscing about when the little bathroom was put in, being nostalgic, thinking I was lucky to have such a long history with a friend and a house. I was shocked to look down and see that my urine was very dark. I was concerned, it was so dark I called my primary care doctor in California and left a message to get an appointment.

By the next morning I had an email with an appointment for the following day.

Midway through the exam, the doctor told me I had to see a gastroenterologist immediately and that I needed a CT-scan that was scheduled for the next day. I saw the gastroenterologist the Saturday before Christmas. He confirmed the diagnosis was pancreatic cancer. He recommended surgery and told me there was only one doctor to perform the surgery, Dr. Howard Reber at UCLA. I was so lucky that my tumor was resectable, that the tumor was blocking the bile duct, making a diagnosis easier. I had a Whipple procedure on January 4th 2013. I was lucky.

I started Chemo with Dr. Isacoff about 10 weeks later. I did 6 months of folfirinox and showed no evidence of disease (NED) for 3 or 4 months. Then my CA19-9 went up. Then I got Gem/Abraxane for 4 months and again got to NED. Six months went by and I had the port removed. Then the CA19-9 went up again. Another port was put in, back on chemo again.

Then I heard about a new procedure whereby they isolate circulating cancer cells in your blood and perform genetic testing. The procedure was so new that the doctor didn’t know how or if it would help. We got the test results. I remember the exact words he said, "we can work with this!" He immediately changed my chemo to Gleevec. I was heartened and excited until the pharmacy called and said the cost of the drug was more than $10,000 per month. I was plunged into uncertainty again, I didn’t know what would happen. Then I got a call from the pharmacy. They told me they found a Prescription Assistance Plan to cover my out of pocket costs. I started taking Gleevec and rapidly proceeded to show no evidence of disease (NED) and have been NED for 5 years. I was lucky.

It has taken awhile to get past all the chemo but I’ll cherish every drop, because it got me to the liquid biopsy and then to where I am now. For the last couple of years I have been lucky to be on the Patient Council of the Canopy Cancer Collective. The Canopy is a group of 14 hospitals that have a Multi-Discipline Center for Pancreatic Cancer. UCLA is a member as well as Johns Hopkins, Stanford, Mass General, UCSD, UCSF & UC Davis to name a few. With the other patients and caregivers in the Canopy Patient Council we have started a peer-to-peer support group that meets monthly to create a community for people fighting this disease. Our group, AnCan (Answer Cancer Foundation) is about people helping people through inclusive virtual peer support that allows for widespread participation, especially to those geographically, physically or socially disadvantaged.

Pancreatic Cancer Awareness month is a time for reflection for me. It is a time for me to show gratitude and thanks-giving for the many personal milestones I have been able to share with my family over these 9+ years. I have been so lucky to celebrate births, b’nai mitzvahs, graduations, theater productions, marriages, science fairs, birthdays, bike rides, I am so lucky to have time.