Caregiving for a loved one with pancreatic cancer is a challenging and continuously evolving role. Although it can be filled with rewards and joy, it can also be overwhelming and exhausting. Upon being diagnosed, there is a learning curve for both parties as the patient learns what they need and the caregiver learns what to expect throughout the treatment journey.
We are here to help navigate these complex waters and be a source of support for pancreatic cancer patients and their families. We are dedicated to helping those facing a diagnosis and creating valuable tools to assist both the patient, family member and caregiver. We have an extensive library of resources. If you would like to speak with someone, contact Patient Support today.
Advice for Caregivers
Time is of the essence to help people with pancreatic cancer move from shock to a place where they are present in the decision making process of their care. This responsibility can often fall to the caregiver or loved ones and can be a very difficult dynamic to navigate. Caregivers face the possibility of emotional burnout that is exacerbated by the desire to control their environment in an attempt to cope with loss, fear, and feeling powerless. Being a caregiver can be a full time responsibility. We suggest you find time to focus on yourself, as well as the patient, so that you are healthy enough to care for the patient. Here are some suggestions for the caregiver:
Find help – Learn to ask for and accept offers of help. It is important to be able to ask friends, family, or professionals for some assistance. Our Patient Support Services are here for you.
Find support – Talk with other caregivers, attend support groups, and most of all, know that you are not alone. Discuss, listen and learn from other caregivers and patients to understand both perspectives.
Be the advocate – Keep records of side effects or other issues you want to share with the doctor between appointments, create a list of questions for the physician, research treatments and educate yourself on resources for the patient. Our Symptom Management Workbook was created specifically for helping keep you organized or consider a digital app.
Understand your rights – As a caregiver, you have rights. Be aware of the Family and Medical Leave Act and what you are entitled to through your work to take time off and care for a loved one.
More Resources for Caregivers
Caregiving for the Pancreatic Cancer Patient
Newly Diagnosed Patients
Resources for Newly Diagnosed Patients
Nutrition for pancreatic cancer patients
Patient And Caregiver Experiences Study (PACES)